We attach an email complaint from METUP UK to CRUK (we have received a response this week – see below after the complaint) We are a patient-led advocacy group, lobbying
Email complaint to CRUK May 2020
They lie and cancer patients die…
Dear social media companies, Your social media platforms are a lifeline to cancer patients, especially those of us who have advanced cancer which will kill us. My friends from social
Founder @abcdiagnosis calls for end to ‘end of treatment bells’ in @Telegraph
Over recent years, ringing a bell to signal the ‘end of treatment’ such as chemotherapy or radiation has become common in hospitals and clinics within the UK (having originated in
What is it like having terminal cancer?
I’ve been asked this question a lot. I’m very open about my diagnosis and don’t mind people asking me questions, but I never know how to answer this one. What
Member @Diamondtrees11 appears with @Oebs1 on @BBCNews discussing the impact of COVID on Cancer Treatment
The coronavirus outbreak has had a serious impact on the treatment of other seriously ill people. Cancer care has been badly affected, with some screening, treatments and trials postponed or
Response by Breast Cancer Now to our April open email
Our April email. 17.4.20 Dear Jo, Jo, Leslie, Beth and all at METUP UK, I hope you and your families are okay at this difficult time. Thank you for being in
Open email to Breast Cancer Now re COVID19 (& letter for your MP)
Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps
We need you…
When I came onto Twitter in the months after my treatment ended, it wasn’t to become an advocate. Honestly, I’m still not sure I’m anything more than an accidental one.
Member @drbexl talks cancer and COVID with @PremierRadio, whilst ‘stranded’ in New Zealand
This morning member Bex Lewis spoke to John Pantry from Premier Christian Radio from Vaughan Park in New Zealand, where she had won a two-month writing scholarship (and break from
‘I am more than my cancer’ says @Diamondtrees11
METUPUK member Kit D was featured on Breast Cancer Now, as a patient story, living at a young age with ‘de novo’ metastatic cancer, including this section: In reality, I am…