METUPUK has joined the Northern Ireland Coalition (NICCC) and will work collaboratively with partner charities to improve outcomes for cancer patients in Northern Ireland. Ann McBrien, METUPUK’s Northern Ireland Executive
The Economist – Pioneering person-centred breast cancer care – Madeleine Meynell
At the End of May 2024 Madeleine attended an event at the offices of the Economist on Pioneering person-centred breast cancer care. This event was part of a wider project looking at
Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell
Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the
My Journey to Alpelisib – Asha Umrawsingh
Asha died in March this year. She wrote this blog explaining the problems that she experienced trying to access a drug that she was ineligible for because she fell outside of the
Drugs drugs everywhere, can you access ones that work? Kirstin Spencer
Here at METUPUK, we know drug access is a big issue for all metastatic breast cancer patients. There have been huge leaps and bounds made in terms of research, knowledge
METUPUK at the UK Interdisciplinary Breast Cancer Symposium
METUPUK (Metastatic Exchange To Unleash Power) attended the 2024 United Kingdom’s Interdisciplinary Breast Cancer Symposium in Birmingham, hosted by Breast Cancer Now and supported by numerous partners. It was a
Dear Beth…
Hi Beth, it’s Kat here, We never met but your name is talked about so often. Whether it be an amazing thing you did, a funny story, your intellect on
Kit Dzeryn
Sadly our Kit @Diamondtrees11 died on Monday 7th May. Her husband Phillip contacted us with the tragic news. We didn’t meet Kit but she was an integral part of METUPUK
On the trail of a clinical trial (Kit’s story)
Clinical trials are essential for testing new treatments for metastatic breast cancer. For patients, they represent hope – the chance to get access to a new potential treatment before it
Drug access – drug hope vs financial approval…
I contacted METUPUK when I was diagnosed as a primary patient in 2018. Even though my mum died of secondary breast cancer in 2015 I had no real understanding of the metastatic disease and the challenges patients face getting access to the treatment they need.