Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell

Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the

Metastatic May – a Primary Patient by Jane Cooke

I was diagnosed with hormone positive primary breast cancer in February 2022. I had a lumpectomy, chemotherapy, radiotherapy and am now on 10 years of reduce risking hormone repressing therapy.   

When D-Day’s DE NOVO – Sue Thomas

When D-Day’s DE NOVO  My name is Sue, I’m a wife, a mum, a nanny, a daughter, a friend, a Metastatic Breast Cancer patient, and an advocate.  My breast cancer

Guilt – Helen Stewart

As mothers, we have a strong biological urge to protect our offspring. To protect them and keep them safe from harm. That urge starts at their birth and continues as

Anticipatory Grief – Relationships and metastatic breast cancer – Jo Taylor

I first came across “anticipatory grief” whilst friends with Sarah Illingsworth, who had metastatic breast cancer and was a Trustee for Breast Cancer Now.  She was bold and forthright and

#FightingMBCplatitudes – Uncovering insensitive platitudes: a survey of people with metastatic breast cancer (MBC)

Last Autumn, Jo Taylor founder of After Breast Cancer Diagnosis and METUPUK and Eva Schumacher from Mamma Mia, an online German cancer magazine, (Eva is a patient living with MBC),

A Sister’s Perspective – Emma Smith (Trustee)

We had all plunged into a big black hole of despair in the days which followed my sister Helen’s metastatic breast cancer (MBC) diagnosis.  Two and a half years on