In September last year, one of our Trustees Louise Furneaux died from metastatic breast cancer. She was a valued member of METUPUK and was our most recently appointed trustee. She
“I’m definitely living. I’m not dying yet.”
Sandy Sexton, patient advocate for METUPUK, is campaigning in Scotland on behalf of secondary/metastatic Breast Cancer patients. In October last year, after 18 months of debilitating back pain, Sandy was
Postcode Lotteries
What’s your postcode and what does that say about you? If I asked a healthy person about the importance of their postcode I suspect they’d tell me about local schools,
Moo to you too!
Hi my name is Kit and apparently I’m a stubborn cow! Now the person who told me that didn’t think it was a good thing. But for a secondary breast
What’s so bad about fears and tears?
I’m 36 years old and I’m dying of secondary breast cancer. As a result I’m petrified 24/7. I’m currently waiting for scan results that will tell me if my current
Herceptin report re access to 3rd and subsequent line of therapy problem with drug access
10th July 2020 Hi Debbie, Trying to condense the points from the June email with attachments I sent you. Going forward what we would like now is – for you
Email complaint to CRUK May 2020
We attach an email complaint from METUP UK to CRUK (we have received a response this week – see below after the complaint) We are a patient-led advocacy group, lobbying
They lie and cancer patients die…
Dear social media companies, Your social media platforms are a lifeline to cancer patients, especially those of us who have advanced cancer which will kill us. My friends from social
Open email to Breast Cancer Now re COVID19 (& letter for your MP)
Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps
We need you…
When I came onto Twitter in the months after my treatment ended, it wasn’t to become an advocate. Honestly, I’m still not sure I’m anything more than an accidental one.