#TrodelvyNow! 

#TrodelvyNow!

Of all the subtypes of metastatic breast cancer, metastatic Triple Negative Breast Cancer (TNBC) is the hardest to treat with the worst prognosis. While new advances in the treatment of hormone positive MBC and Her2 MBC have helped some patients live for a number of years, average life expectancy for someone with metastatic TNBC is just 12-18 months.

Fighting for Palbociclib

Fighting for Ibrance

Under NICE rules, I would not be eligible to receive the medication that I am currently taking for my metastatic breast cancer on the NHS. I have been on my current drug regime since 2017, I am feeling really well, my disease is stable, and my scans are clear.

I began taking Palbociclib over 3 years ago, badgering my Oncologist and accessing it through a free trial set up by Pfizer. The trial was designed to sway NICE into approving the drug for NHS use, despite it’s high price.

The Cancer Postcode Lottery

The cancer postcode lottery

I have been living with secondary breast cancer for 7 years, and am very aware that I’m one of the very lucky ones as the median life expectancy is 2-3 years.  The general public perception of breast cancer is that it’s ‘sorted’ – eg if you get it you will be fine.  But few people realise that when it metastases (spreads) to the organs as mine has, it cannot be cured. It is the biggest killer of women under 50 with over 11,000 women dying of it every year in the UK.  

Aren’t you a bit young to have a pacemaker

Aren’t you a bit young to have a pacemaker

Stage 4 breast cancer with a pacemaker

Most people know someone with a pacemaker, and chances are that person will be elderly. The average age of a first pacemaker implantation in the UK is 72, but pacemakers are actually fitted in people of all ages from newborn babies to the very elderly. I was 39 when I had mine, which was needed as a complication after heart surgery to replace my aortic valve and root.

Postcode Lotteries

What’s your postcode and what does that say about you? If I asked a healthy person about the importance of their postcode I suspect they’d tell me about local schools,