What Not to Say – Mean Well (Stupid Things People Say) – Rebecca Brown
Lymphoedema and me… Kirstin Spencer
My lymphoedema started very abruptly. One night, I developed unbelievably bad pain in my arm and shoulder. It was awful. I showered, tried to rub it better. When I went
Could the next big drug for metastatic breast cancer patients be physical activity?
I have always participated in some kind of form of physical activity. I was a gymnast when I was young, loved the fact I could walk on my hands, do
PARP inhibitor Talazoparib recommended by NICE for the treatment of hereditary BRCA mutated metastatic breast cancer
METUPUK are delighted by the National Institute of Clinical Excellence (NICE) decision to recommend Talazoparib (Talzenna ®, Pfizer Ltd.) for treating HER2-negative, locally advanced or metastatic breast cancer with germline
The Irony of Metastatic Breast Cancer – Mary Huckle
Many of our followers on social media will remember Mary Huckle and her tireless campaigning for #metastaticbreastcancer awareness. This blog post is the last content she wrote for us, a
Trodelvy Now! Latest Update
METUPUK are delighted that NICE has accepted Trodelvy (sacituzumab govitecan) for routine use on the NHS in England for the treatment of patients with unresectable locally advanced or metastatic triple-negative breast cancer who have received two or more prior lines of systemic therapies. This follows on from the decision to approve Trodelvy in NHS Scotland in March 2022. Wales and Northern Ireland normally follow decisions by NHS England and we hope that Trodelvy will be made available to every patient who is eligible without delay.
Palliative Care – Why it’s important to have an Advanced Care Plan
Hi, I’m Kat, and I’m a nurse at Dr Kershaw’s Hospice in Oldham. You’ve heard from me before and today I wanted to share with you my experiences of supporting Becky, an incredible woman living with metastatic breast cancer, and my thoughts on what I hope early hospice care was able to contribute to her life.
Drugs, Drugs, Drugs
I think sometimes when those outside the cancer world imagine what treatment is like they think we go in, have some chemo, take some photos dancing around our IV pole and then go home and rest for a few days…. And don’t get me wrong I’m one of those people who have taken a cheeky chemo selfie and donned numerous items of leopard print to get me through those loooooooong days in the chemo ward, it’s like armour for what is essentially ritual poisoning!
The serial killer inside me
I’m 36 and I walk around with a serial killer inside of me. One day soon, almost certainly before my 40th birthday, that serial killer is going to break free and end my life in a slow and painful way. To delay this from happening I’ve had to fill my body with poison (some of the drug boxes actually have skull and crossbones warning signs on!).
A Real Life Accounts of Accessing Clinical Trials
In 2018 I was diagnosed with secondary breast cancer in my liver, I was 44.
I knew the survival statistics were grim, so decided from the outset, in order to outlive the 2 to 3-year median I’d have to embrace experimental drugs and treatments.
I made this clear during my first oncology appointment, telling my doctor I was keen to sign up for clinical trials right from the start.