METUPUK are delighted by the National Institute of Clinical Excellence (NICE) decision to recommend Talazoparib (Talzenna ®, Pfizer Ltd.) for treating HER2-negative, locally advanced or metastatic breast cancer with germline
NICE Methodology Roundtable Discussion
In November 2023 METUPUK trustee Madeleine Meynell was a panel member at the event Optimising NICE outcomes: Policy roundtable on the evolution of NICE methodology and how patient organisations can
Being invisible on a cancer ward…
Tassia Haines – METUPUK (Wales) member, patient advocate & fantastic artist. Back in February, I had to go into hospital after side effects from being on Trodelvy. I wanted
Emma R is Busy Living with Mets
One of the feelings I remember most about my treatment for primary breast cancer in 2013 is my strength leaving me… I was on my lunch break after starting chemotherapy (yes I worked through treatment – I was 31 and freelance) and it felt like my stomach muscles just turned to jelly and tumbled out onto the pavement (invisibly – nobody else had a clue what was going on).
Statistics for Metastatic Breast Cancer
We started our campaign in Metastatic May with some information about treatment lines and it really caused a bit of a stir, especially on Instagram.
Why? Because people don’t want to think that this disease is going to kill us. We have to remain positive. We have to see the chink of light and I agree we all have to have hope. That was my introduction. We need hope.
Aren’t you a bit young to have a pacemaker
Stage 4 breast cancer with a pacemaker
Most people know someone with a pacemaker, and chances are that person will be elderly. The average age of a first pacemaker implantation in the UK is 72, but pacemakers are actually fitted in people of all ages from newborn babies to the very elderly. I was 39 when I had mine, which was needed as a complication after heart surgery to replace my aortic valve and root.
METUP-UK Member @drbexl talks about being a ‘good enough cancer patient’ on @iamwillonline podcast
METUP-UK member Bex Lewis was pleased to be invited to join Will Taylor’s ‘Good Enough’ podcast, off the back of social media content talking about the problematic nature of talking
Remembering Jo Myatt (@JoanneMyatt25), friend, advocate and supporter of METUPUK #IAmThe31
I met Jo 3 years ago at the Conservative Party conference as we were both involved with the Breast Cancer Care (BCC) conference stand. When we met we realised we
Chatting to @ForeverCopilots – Travelling and Truly #BusyLivingWithMets
My name is Kate Gross, And I’m a 3 x cancer survivor. We are planning the adventure of a lifetime, but first a little about me. I’m 50 years old
METUPUK member @drbexl talks hope and grief with @HopefulActivism podcast
Last week METUPUK activist Bex Lewis spoke to Abigail Thomas for the Christian podcast – ‘The Hopeful Activists‘ – around the theme of grief and h0pe within the cancer experience: