METUPUK has joined the Northern Ireland Coalition (NICCC) and will work collaboratively with partner charities to improve outcomes for cancer patients in Northern Ireland. Ann McBrien, METUPUK’s Northern Ireland Executive
METUPUK update
METUPUK members have done amazing things in the last two years and continue to do so. Here is an update on the last two months: Founder Jo Taylor was due
The Economist – Pioneering person-centred breast cancer care – Madeleine Meynell
At the End of May 2024 Madeleine attended an event at the offices of the Economist on Pioneering person-centred breast cancer care. This event was part of a wider project looking at
Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell
Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the
Metastatic May – a Primary Patient by Jane Cooke
I was diagnosed with hormone positive primary breast cancer in February 2022. I had a lumpectomy, chemotherapy, radiotherapy and am now on 10 years of reduce risking hormone repressing therapy.
What Not to Say – Mean Well (Stupid Things People Say) – Rebecca Brown
Could the next big drug for metastatic breast cancer patients be physical activity?
I have always participated in some kind of form of physical activity. I was a gymnast when I was young, loved the fact I could walk on my hands, do
#FightingMBCplatitudes – Uncovering insensitive platitudes: a survey of people with metastatic breast cancer (MBC)
Last Autumn, Jo Taylor founder of After Breast Cancer Diagnosis and METUPUK and Eva Schumacher from Mamma Mia, an online German cancer magazine, (Eva is a patient living with MBC),
METUPUK at the UK Interdisciplinary Breast Cancer Symposium
METUPUK (Metastatic Exchange To Unleash Power) attended the 2024 United Kingdom’s Interdisciplinary Breast Cancer Symposium in Birmingham, hosted by Breast Cancer Now and supported by numerous partners. It was a
NICE Methodology Roundtable Discussion
In November 2023 METUPUK trustee Madeleine Meynell was a panel member at the event Optimising NICE outcomes: Policy roundtable on the evolution of NICE methodology and how patient organisations can