Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell

Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the

When D-Day’s DE NOVO – Sue Thomas

When D-Day’s DE NOVO  My name is Sue, I’m a wife, a mum, a nanny, a daughter, a friend, a Metastatic Breast Cancer patient, and an advocate.  My breast cancer

Guilt – Helen Stewart

As mothers, we have a strong biological urge to protect our offspring. To protect them and keep them safe from harm. That urge starts at their birth and continues as

Anticipatory Grief – Relationships and metastatic breast cancer – Jo Taylor

I first came across “anticipatory grief” whilst friends with Sarah Illingsworth, who had metastatic breast cancer and was a Trustee for Breast Cancer Now.  She was bold and forthright and

Lymphoedema and me… Kirstin Spencer

My lymphoedema started very abruptly. One night, I developed unbelievably bad pain in my arm and shoulder.  It was awful.  I showered, tried to rub it better.  When I went

#FightingMBCplatitudes – Uncovering insensitive platitudes: a survey of people with metastatic breast cancer (MBC)

Last Autumn, Jo Taylor founder of After Breast Cancer Diagnosis and METUPUK and Eva Schumacher from Mamma Mia, an online German cancer magazine, (Eva is a patient living with MBC),

Your Cancer Crew – getting with those that get it – Sue Thomas

In April 2021, when I was told that I had de novo (straight to Stage 4) metastatic breast cancer, this rocked our world as a family and changed our lives