Do you remember what you were wearing on 1 December 2019? Probably not. I do…

METUPUK patient advocate Carole describes her experience of whole brain radiation for suspected leptomeningeal disease (LMD). Do you remember what you were wearing on 1 December 2019? Probably not. I

Lymphoedema and me… Kirstin Spencer

My lymphoedema started very abruptly. One night, I developed unbelievably bad pain in my arm and shoulder.  It was awful.  I showered, tried to rub it better.  When I went

PARP inhibitor Talazoparib recommended by NICE for the treatment of hereditary BRCA mutated metastatic breast cancer

METUPUK are delighted by the National Institute of Clinical Excellence (NICE) decision to recommend Talazoparib (Talzenna ®, Pfizer Ltd.) for treating HER2-negative, locally advanced or metastatic breast cancer with germline

The Irony of Metastatic Breast Cancer – Mary Huckle

Many of our followers on social media will remember Mary Huckle and her tireless campaigning for #metastaticbreastcancer awareness. This blog post is the last content she wrote for us, a

Trodelvy Now! Latest Update

Trodelvy Approved by NICE

METUPUK are delighted that NICE has accepted Trodelvy (sacituzumab govitecan) for routine use on the NHS in England for the treatment of patients with unresectable locally advanced or metastatic triple-negative breast cancer who have received two or more prior lines of systemic therapies. This follows on from the decision to approve Trodelvy in NHS Scotland in March 2022. Wales and Northern Ireland normally follow decisions by NHS England and we hope that Trodelvy will be made available to every patient who is eligible without delay.

Drugs, Drugs, Drugs

Drugs, drugs, drugs, like patching up a sinking boat

I think sometimes when those outside the cancer world imagine what treatment is like they think we go in, have some chemo, take some photos dancing around our IV pole and then go home and rest for a few days…. And don’t get me wrong I’m one of those people who have taken a cheeky chemo selfie and donned numerous items of leopard print to get me through those loooooooong days in the chemo ward, it’s like armour for what is essentially ritual poisoning! 

The serial killer inside me

I’m 36 and I walk around with a serial killer inside of me. One day soon, almost certainly before my 40th birthday, that serial killer is going to break free and end my life in a slow and painful way. To delay this from happening I’ve had to fill my body with poison (some of the drug boxes actually have skull and crossbones warning signs on!).