As a secondary breast cancer patient living with an incurable disease, I feel very strongly about wording. Wording like fight, battle and lost/loosing. Words matter. So, I also think that
Supportive Care
Herceptin report re access to 3rd and subsequent line of therapy problem with drug access
10th July 2020 Hi Debbie, Trying to condense the points from the June email with attachments I sent you. Going forward what we would like now is – for you
Email complaint to CRUK May 2020
We attach an email complaint from METUP UK to CRUK (we have received a response this week – see below after the complaint) We are a patient-led advocacy group, lobbying
They lie and cancer patients die…
Dear social media companies, Your social media platforms are a lifeline to cancer patients, especially those of us who have advanced cancer which will kill us. My friends from social
Founder @abcdiagnosis calls for end to ‘end of treatment bells’ in @Telegraph
Over recent years, ringing a bell to signal the ‘end of treatment’ such as chemotherapy or radiation has become common in hospitals and clinics within the UK (having originated in
What is it like having terminal cancer?
I’ve been asked this question a lot. I’m very open about my diagnosis and don’t mind people asking me questions, but I never know how to answer this one. What
Member @Diamondtrees11 appears with @Oebs1 on @BBCNews discussing the impact of COVID on Cancer Treatment
The coronavirus outbreak has had a serious impact on the treatment of other seriously ill people. Cancer care has been badly affected, with some screening, treatments and trials postponed or
Response by Breast Cancer Now to our April open email
Our April email. 17.4.20 Dear Jo, Jo, Leslie, Beth and all at METUP UK, I hope you and your families are okay at this difficult time. Thank you for being in
Open email to Breast Cancer Now re COVID19 (& letter for your MP)
Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps
We need you…
When I came onto Twitter in the months after my treatment ended, it wasn’t to become an advocate. Honestly, I’m still not sure I’m anything more than an accidental one.