We attach an email complaint from METUP UK to CRUK (we have received a response this week – see below after the complaint) We are a patient-led advocacy group, lobbying
Email complaint to CRUK May 2020
Open email to Breast Cancer Now re COVID19 (& letter for your MP)
Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps
We need you…
When I came onto Twitter in the months after my treatment ended, it wasn’t to become an advocate. Honestly, I’m still not sure I’m anything more than an accidental one.
ABC5 Lisbon – The Global Alliance
Key Messages This was my first time at this conference which is held in Lisbon every 2 years and focuses entirely on Advanced Breast Cancer. Jo had been to the
Members of MetUpUK descend on parliament
Terminal breast cancer patients descended on parliament last week. Armed with over 70,000 signatures, they demanded change for the tens of thousands in the UK living with the killer disease.
It’s not just hair!
Anger sometimes comes in waves, but I try to take my mind off things with work, outdoor activities and of course day to day life with my husband and two
Life on a Phase 1 clinical trial
When I was told in late 2015 that I’d secured the last place on a phase 1 clinical trial, I didn’t in my wildest dreams think I’d end up still
UKIBCS Jan 2020
The below are links to details of introduction to trials and how to interpret trials. Lots of information and hard to understand some as its quite top level but worth
Conferences – UKBI May and November 2020
***SAVE THE DATES*** UK Breast Intergroup Meetings 1st May and 17th November 2020 Dear members, To help you plan your agenda for 2020, we would like to inform you that
Secondary Breast Cancer Awareness Conference 2019 – Swansea
I was invited by Ann Baker to attend the Secondary Breast Cancer Awareness Conference 2019 in Swansea. Unbelievably she is the ONLY Clinical Nurse Specialist in Wales! It was a