METUPUK are devastated by the news that one of our Trustees and friend Connie Johncock has died. Connie was a founder trustee of METUPUK and our Treasurer, overseeing our finances as we
Our friend Connie Johncock
Philippa Hetherington Remembered
We had to confirm back on the 5th November the heartbreaking news that the wonderful Philippa Hetherington had died 💔
She was an absolute force of intellectual nature for breast cancer in general, not just Inflammatory Breast Cancer.
Did you know that the Trodelvy campaign in England for TNBC was HER campaign?
Join us as Laura, Mary Helen & Emily discuss primary & secondary breast cancer.
Have you ever wondered what the relationship is like between primary and secondary breast cancer patients when they are talking about cancer?
We’ve put 4 of our MetUpUK members on a zoom call to chat it out – Mary and Laura have secondary cancer and Helen and Emily have had primary breast cancer.
THE DARKER SIDE OF PINK: UK-WIDE CAMPAIGN REVEALS THE REALITY OF LIVING WITH SECONDARY BREAST CANCER
31 life size figures of women are now set to tour the UK as an interactive campaign to raise awareness of issues surrounding secondary breast cancer after a small residency with the support of The Corn Exchange in Manchester.
Remembering Leila Asoko
I was totally shocked and saddened by the news that friend Leila Asoko died on 30th November.
A vibrant, intelligent, passionate, articulate, beautiful, ballsy, black woman who came on the abcd retreat in June 2021.
Emma R is Busy Living with Mets
One of the feelings I remember most about my treatment for primary breast cancer in 2013 is my strength leaving me… I was on my lunch break after starting chemotherapy (yes I worked through treatment – I was 31 and freelance) and it felt like my stomach muscles just turned to jelly and tumbled out onto the pavement (invisibly – nobody else had a clue what was going on).
Cancer Poverty: The financial burden of metastatic breast cancer… Emma’s Story
Metastatic breast cancer is not only taking the lives of 31 women per day. In the limited time they have left women living with this disease are experiencing financial hardship.
A thousand beautiful moments worth living for
When I was first diagnosed with cancer, my primary cancer, at 35 in July 2016 I was determined that I wouldn’t let cancer take over my life. I sat in a chair and thought I’d have 8 months of treatment and be done with it. Oh. What a fool I was.
Fighting for Palbociclib
Under NICE rules, I would not be eligible to receive the medication that I am currently taking for my metastatic breast cancer on the NHS. I have been on my current drug regime since 2017, I am feeling really well, my disease is stable, and my scans are clear.
I began taking Palbociclib over 3 years ago, badgering my Oncologist and accessing it through a free trial set up by Pfizer. The trial was designed to sway NICE into approving the drug for NHS use, despite it’s high price.
Aren’t you a bit young to have a pacemaker
Stage 4 breast cancer with a pacemaker
Most people know someone with a pacemaker, and chances are that person will be elderly. The average age of a first pacemaker implantation in the UK is 72, but pacemakers are actually fitted in people of all ages from newborn babies to the very elderly. I was 39 when I had mine, which was needed as a complication after heart surgery to replace my aortic valve and root.