As a partner of someone with metastatic cancer, it can be very difficult to know what the right amount of paid work is to do. Sometimes it feels like I
Feeling guilty FOR working. Feeling guilty for NOT working.
LMD (Leptomeningeal Disease) and whole brain radiotherapy – Carole’s story
Do you remember what you were wearing on 1 December 2019? Probably not. I do though. I was wearing a blue Valencia Marathon t-shirt, an exhausted but elated perma-grin and
On the trail of a clinical trial (Kit’s story)
Clinical trials are essential for testing new treatments for metastatic breast cancer. For patients, they represent hope – the chance to get access to a new potential treatment before it
Abemaciclib – new treatment
Starting a new medication can be a daunting experience, especially if the medication is still fairly new to the market. Abemaciclib may not be a household name, but for those
China Doll
Birthday and cancerversaries became bittersweet as I was dealing with the realities of cancer, the side effects, the constant fear of the unknown, the helplessness, the indignity of losing who you are, who you were, even things you take for granted like walking up your own stairs or getting out the bath (because the treatment has made you weak).
And so, I feel with every year I am living with MBC, with every new treatment and with every progression, I am like a china doll. Leaving broken pieces of me behind.
The Irony of Metastatic Breast Cancer – Mary Huckle
Many of our followers on social media will remember Mary Huckle and her tireless campaigning for #metastaticbreastcancer awareness. This blog post is the last content she wrote for us, a
Being invisible on a cancer ward…
Tassia Haines – METUPUK (Wales) member, patient advocate & fantastic artist. Back in February, I had to go into hospital after side effects from being on Trodelvy. I wanted
Breathing Techniques with Louisa from Breathe Balance Be
“As long as you are breathing, there is more right with you than there is wrong…..”
Mental Health and Metastatic Breast Cancer
The human brain is hardwired to seek out danger. It’s part of being human, an inbuilt survival mechanism designed to protect us. Normal functioning of the mind enables us to
Drug access – drug hope vs financial approval…
I contacted METUPUK when I was diagnosed as a primary patient in 2018. Even though my mum died of secondary breast cancer in 2015 I had no real understanding of the metastatic disease and the challenges patients face getting access to the treatment they need.