Many of our followers on social media will remember Mary Huckle and her tireless campaigning for #metastaticbreastcancer awareness. This blog post is the last content she wrote for us, a
The Irony of Metastatic Breast Cancer – Mary Huckle
Drug access – drug hope vs financial approval…
I contacted METUPUK when I was diagnosed as a primary patient in 2018. Even though my mum died of secondary breast cancer in 2015 I had no real understanding of the metastatic disease and the challenges patients face getting access to the treatment they need.
My Journey to Alpelisib
Oh how I wished it was a walking journey! That I could deal with! But in the last 6 months my oncologist’s quest to get me to have this PIKC3A targeted drug, was admirable, and left us on a roller coaster of emotions.
METUPUK’s award winning campaign The Darker Side of Pink, highlighting the 31 women a day who die of Breast Cancer, is coming to the Houses of Parliament, London.
‘The Darker Side of Pink’ was launched in Breast Cancer Awareness Month 2021 by METUPUK – the UK’s only patient advocacy group dedicated to Metastatic (Secondary) Breast Cancer (MBC) –
Philippa Hetherington Remembered
We had to confirm back on the 5th November the heartbreaking news that the wonderful Philippa Hetherington had died 💔
She was an absolute force of intellectual nature for breast cancer in general, not just Inflammatory Breast Cancer.
Did you know that the Trodelvy campaign in England for TNBC was HER campaign?
Statistics for Metastatic Breast Cancer
We started our campaign in Metastatic May with some information about treatment lines and it really caused a bit of a stir, especially on Instagram.
Why? Because people don’t want to think that this disease is going to kill us. We have to remain positive. We have to see the chink of light and I agree we all have to have hope. That was my introduction. We need hope.
Member @Diamondtrees11 asks: do we need a trigger warning for #IAmThe31 on #MBCDay?
This blog will probably upset some people. I talk about real life. In fact I talk about my life. My life with incurable, but always fatal, secondary breast cancer aged