Others reaction to my cancer. It’s the reaction of others that really gets me. It’s like you have an infectious disease sometimes; people avoid you in the shops, they
#FightingMBCplatitudes – Uncovering insensitive platitudes: a survey of people with metastatic breast cancer (MBC)
Last Autumn, Jo Taylor founder of After Breast Cancer Diagnosis and METUPUK and Eva Schumacher from Mamma Mia, an online German cancer magazine, (Eva is a patient living with MBC),
Your Cancer Crew – getting with those that get it – Sue Thomas
In April 2021, when I was told that I had de novo (straight to Stage 4) metastatic breast cancer, this rocked our world as a family and changed our lives
A Sister’s Perspective – Emma Smith (Trustee)
We had all plunged into a big black hole of despair in the days which followed my sister Helen’s metastatic breast cancer (MBC) diagnosis. Two and a half years on
My Journey to Alpelisib – Asha Umrawsingh
Asha died in March this year. She wrote this blog explaining the problems that she experienced trying to access a drug that she was ineligible for because she fell outside of the
Drugs drugs everywhere, can you access ones that work? Kirstin Spencer
Here at METUPUK, we know drug access is a big issue for all metastatic breast cancer patients. There have been huge leaps and bounds made in terms of research, knowledge
How much is a year of life worth? Madeleine Meynell
How much is a year of life worth? Everyone’s life has a price on it but, for most healthy people, this is not something that occupies their waking thoughts. A
METUPUK at the UK Interdisciplinary Breast Cancer Symposium
METUPUK (Metastatic Exchange To Unleash Power) attended the 2024 United Kingdom’s Interdisciplinary Breast Cancer Symposium in Birmingham, hosted by Breast Cancer Now and supported by numerous partners. It was a
LMD (Leptomeningeal Disease) and whole brain radiotherapy – Carole’s story
Do you remember what you were wearing on 1 December 2019? Probably not. I do though. I was wearing a blue Valencia Marathon t-shirt, an exhausted but elated perma-grin and
On the trail of a clinical trial (Kit’s story)
Clinical trials are essential for testing new treatments for metastatic breast cancer. For patients, they represent hope – the chance to get access to a new potential treatment before it