Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell

Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the

Metastatic May – a Primary Patient by Jane Cooke

I was diagnosed with hormone positive primary breast cancer in February 2022. I had a lumpectomy, chemotherapy, radiotherapy and am now on 10 years of reduce risking hormone repressing therapy.   

When D-Day’s DE NOVO – Sue Thomas

When D-Day’s DE NOVO  My name is Sue, I’m a wife, a mum, a nanny, a daughter, a friend, a Metastatic Breast Cancer patient, and an advocate.  My breast cancer

Guilt – Helen Stewart

As mothers, we have a strong biological urge to protect our offspring. To protect them and keep them safe from harm. That urge starts at their birth and continues as

Anticipatory Grief – Relationships and metastatic breast cancer – Jo Taylor

I first came across “anticipatory grief” whilst friends with Sarah Illingsworth, who had metastatic breast cancer and was a Trustee for Breast Cancer Now.  She was bold and forthright and

Lymphoedema and me… Kirstin Spencer

My lymphoedema started very abruptly. One night, I developed unbelievably bad pain in my arm and shoulder.  It was awful.  I showered, tried to rub it better.  When I went

Your Cancer Crew – getting with those that get it – Sue Thomas

In April 2021, when I was told that I had de novo (straight to Stage 4) metastatic breast cancer, this rocked our world as a family and changed our lives