The week of 4-8 November 2024 is set aside to celebrate the work of nearly 1 million trustees volunteering for charities across the UK. Trustees are individuals responsible for the
Breast cancer patients denied life-extending drug by NICE
A cancer drug which received standing ovation from the Global Medical Community is being withheld from NHS breast cancer patients. METUPUK are devastated by NICE decision not to recommend the drug
The Economist – Pioneering person-centred breast cancer care – Madeleine Meynell
At the End of May 2024 Madeleine attended an event at the offices of the Economist on Pioneering person-centred breast cancer care. This event was part of a wider project looking at
Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell
Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the
Metastatic May – a Primary Patient by Jane Cooke
I was diagnosed with hormone positive primary breast cancer in February 2022. I had a lumpectomy, chemotherapy, radiotherapy and am now on 10 years of reduce risking hormone repressing therapy.
When D-Day’s DE NOVO – Sue Thomas
When D-Day’s DE NOVO My name is Sue, I’m a wife, a mum, a nanny, a daughter, a friend, a Metastatic Breast Cancer patient, and an advocate. My breast cancer
Guilt – Helen Stewart
As mothers, we have a strong biological urge to protect our offspring. To protect them and keep them safe from harm. That urge starts at their birth and continues as
Anticipatory Grief – Relationships and metastatic breast cancer – Jo Taylor
I first came across “anticipatory grief” whilst friends with Sarah Illingsworth, who had metastatic breast cancer and was a Trustee for Breast Cancer Now. She was bold and forthright and
#FightingMBCplatitudes – Uncovering insensitive platitudes: a survey of people with metastatic breast cancer (MBC)
Last Autumn, Jo Taylor founder of After Breast Cancer Diagnosis and METUPUK and Eva Schumacher from Mamma Mia, an online German cancer magazine, (Eva is a patient living with MBC),
A Sister’s Perspective – Emma Smith (Trustee)
We had all plunged into a big black hole of despair in the days which followed my sister Helen’s metastatic breast cancer (MBC) diagnosis. Two and a half years on