The Scottish Medicines Consortium (SMC) have decided against funding the metastatic breast cancer drug alpelisib (Piqray).
Philippa Hetherington Remembered
We had to confirm back on the 5th November the heartbreaking news that the wonderful Philippa Hetherington had died 💔
She was an absolute force of intellectual nature for breast cancer in general, not just Inflammatory Breast Cancer.
Did you know that the Trodelvy campaign in England for TNBC was HER campaign?
Postcode Lotteries
What’s your postcode and what does that say about you? If I asked a healthy person about the importance of their postcode I suspect they’d tell me about local schools,
Moo to you too!
Hi my name is Kit and apparently I’m a stubborn cow! Now the person who told me that didn’t think it was a good thing. But for a secondary breast
What’s so bad about fears and tears?
I’m 36 years old and I’m dying of secondary breast cancer. As a result I’m petrified 24/7. I’m currently waiting for scan results that will tell me if my current
Supportive Care
As a secondary breast cancer patient living with an incurable disease, I feel very strongly about wording. Wording like fight, battle and lost/loosing. Words matter. So, I also think that
Herceptin report re access to 3rd and subsequent line of therapy problem with drug access
10th July 2020 Hi Debbie, Trying to condense the points from the June email with attachments I sent you. Going forward what we would like now is – for you
Email complaint to CRUK May 2020
We attach an email complaint from METUP UK to CRUK (we have received a response this week – see below after the complaint) We are a patient-led advocacy group, lobbying
They lie and cancer patients die…
Dear social media companies, Your social media platforms are a lifeline to cancer patients, especially those of us who have advanced cancer which will kill us. My friends from social
Open email to Breast Cancer Now re COVID19 (& letter for your MP)
Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps