Why I volunteer with METUPUK…

I was diagnosed with primary breast cancer in 2015, and it all felt like a terrible mistake.  I was 43, in my final year of an optometry degree and already

I’m a 51 year old NHS nurse and 18 months ago I was told i had MBC…

Be confident that you know your body:  I am a 51-year-old NHS nurse and 18 months ago was told that I had metastatic breast cancer spreading to my spine, lungs,

I remember the 22nd April 2021 very clearly…

Non dying quick enough for Personal Independence Payment (PIP)  I remember the 22nd April 2021 very clearly, it was the day after I had been diagnosed straight to stage 4

Life has a way of throwing curveballs when you least expect it…

Standing by her side  Life has a way of throwing curveballs when you least expect it. For us, it came in the form of three words that changed everything: “You

Wales update

As many of you know, our beautiful Welsh dragon, Tassia Haines sadly died in March 2024.  Tass touched thousands of lives across the globe, with her informed, honest, humbling, passionate

Breast Cancer is the most diagnosed of ALL cancers worldwide…

We are very much minding the gap! Breast Cancer is the most diagnosed of ALL cancers worldwide.  In the United Kingdom, Metastatic Breast Cancer is the biggest killer of  working

DATA – Delivering Advancements Through Action

Delivering Advancements Through Action  Imagine a metastatic (secondary) breast cancer community within the UK where everybody within it who has ever heard the words, ‘it’s incurable’, is counted and acknowledged

After living with Metastatic Breast Cancer for over 3 years…

Stage 4 shouldn’t be a label that says “treat differently” After living with Metastatic Breast Cancer for over 3 years, I am very familiar with the terms and definitions surrounding

“It shouldn’t be this hard”. That was a comment on my Twitter thread…

Clinical trials are essential for testing new treatments for metastatic breast cancer (MBC). For patients, they represent hope – the chance to get access to a new potential treatment before

Having just completed screening for a clinical trial I must initiate this discussion…

Having just completed screening for a clinical trial I must initiate this discussion. Trials offer treatments not otherwise available – so with limited treatments available, it’s without question that I