I’m a 51 year old NHS nurse and 18 months ago I was told i had MBC…

Be confident that you know your body:  I am a 51-year-old NHS nurse and 18 months ago was told that I had metastatic breast cancer spreading to my spine, lungs,

Wales update

As many of you know, our beautiful Welsh dragon, Tassia Haines sadly died in March 2024.  Tass touched thousands of lives across the globe, with her informed, honest, humbling, passionate

Breast Cancer is the most diagnosed of ALL cancers worldwide…

We are very much minding the gap! Breast Cancer is the most diagnosed of ALL cancers worldwide.  In the United Kingdom, Metastatic Breast Cancer is the biggest killer of  working

DATA – Delivering Advancements Through Action

Delivering Advancements Through Action  Imagine a metastatic (secondary) breast cancer community within the UK where everybody within it who has ever heard the words, ‘it’s incurable’, is counted and acknowledged

Data Collection for metastatic breast cancer…

Kat wrote this blog for Metastatic May but we feel it should be shared again for Breast Cancer Awareness Month as data is a major problem and something that really

Treatement lines and herceptin for HER2+ metastatic breast cancer

Any patient with metastatic breast cancer (MBC) will be familiar with the concept of ‘treatment lines’. Unlike primary breast cancer, where you undergo chemotherapy for a fixed time period, after

METUPUK Breast Cancer Awareness 2024 for metastatic breast cancer

METUPUK’ Breast Cancer Awareness Month campaign for October across the UK and on social media channels. Continuing the synergy with The Darker Side of Pink travelling campaign highlighting the 31 women a

Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell

Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the

Members of MetUpUK descend on parliament

Jo Taylor & Laura Ashurst members of METUPUK attending the petition hand in

Terminal breast cancer patients descended on parliament last week. Armed with over 70,000 signatures, they demanded change for the tens of thousands in the UK living with the killer disease.