A cancer drug which received standing ovation from the Global Medical Community is being withheld from NHS breast cancer patients. METUPUK are devastated by NICE decision not to recommend the drug
METUPUK joins the Northern Ireland Cancer Charities Coalition
METUPUK has joined the Northern Ireland Coalition (NICCC) and will work collaboratively with partner charities to improve outcomes for cancer patients in Northern Ireland. Ann McBrien, METUPUK’s Northern Ireland Executive
METUPUK update
METUPUK members have done amazing things in the last two years and continue to do so. Here is an update on the last two months: Founder Jo Taylor was due
Piqray (Alpelisib) denied by Scottish Medicines Consortium
The Scottish Medicines Consortium (SMC) have decided against funding the metastatic breast cancer drug alpelisib (Piqray).
Don’t Leave Metastatic Breast Cancer Patients in Wales Behind
A new campaign in Wales, by MetUpUK member Tassia Haines, aims to draw attention to the fact that Metastatic Breast Cancer (MBC) patients feel that they are being failed by the Welsh Government.
Tucatinib is approved by NICE for HER2+ metastatic breast cancer
METUPUK welcome the National Institute of Clinical Excellence (NICE) decision to accept Tucatinib with trastuzumab and capecitabine for treating HER2-positive unresectable locally advanced or metastatic breast cancer after 2 or more anti-HER2 therapies for routine commissioning use in NHS in England and Wales.
METUPUK are delighted by the Scottish Medicines Consortium (SMC) approval of two new drugs for metastatic breast cancer for use by NHS Scotland
The Scottish Medicines Consortium (SMC) has approved today:
Trastuzumab deruxtecan (Enhertu) for treating HER2-positive unresectable or metastatic breast cancer in adults who have received two or more prior anti-HER2 based therapies for routine use on the NHS in Scotland.
Tucatinib (Tukysa) with trastuzumab and capecitabine for treating HER2-positive unresectable locally advanced or metastatic breast cancer after two or more anti-HER2 therapies for routine use on the NHS in Scotland.
“Never mind cancer outcomes”
It was shocking to hear the Prime Minister dismiss the importance of cancer outcomes in such an offhand way in a TV interview this week. But at the same time, it was sadly not surprising to many of us at Met-Up UK.
A #TrodelvyNow Update
Following on from our #TrodelvyNow post last month, MetUpUk Member Phillippa has appeared in the Daily Mail, alongside other women for who this drug could mean, literally the difference between life and death.
Statistics for Metastatic Breast Cancer
We started our campaign in Metastatic May with some information about treatment lines and it really caused a bit of a stir, especially on Instagram.
Why? Because people don’t want to think that this disease is going to kill us. We have to remain positive. We have to see the chink of light and I agree we all have to have hope. That was my introduction. We need hope.