Oh how I wished it was a walking journey! That I could deal with! But in the last 6 months my oncologist’s quest to get me to have this PIKC3A targeted drug, was admirable, and left us on a roller coaster of emotions.
Pembrolizumab approved by the SMC – Scottish Medicines Consortium
METUPUK welcomes the Scottish Medicines Consortium (SMC) decision to accept pembrolizumab (Keytruda, Merck Sharp and Dohme) plus chemotherapy (paclitaxel or nab-paclitaxel) for use on the NHS in Scotland. Pembrolizumab is
METUPUK advocate @little_emmabird speaks with @ICR_London re drug pricing
METUPUK advocate Emma Robertson spoke with ICR on pricing for cancer drugs, and gave insights into how the process can be sped up, saving more lives. The article covers the
Postcode Lotteries
What’s your postcode and what does that say about you? If I asked a healthy person about the importance of their postcode I suspect they’d tell me about local schools,
What’s so bad about fears and tears?
I’m 36 years old and I’m dying of secondary breast cancer. As a result I’m petrified 24/7. I’m currently waiting for scan results that will tell me if my current
Herceptin report re access to 3rd and subsequent line of therapy problem with drug access
10th July 2020 Hi Debbie, Trying to condense the points from the June email with attachments I sent you. Going forward what we would like now is – for you
Email complaint to CRUK May 2020
We attach an email complaint from METUP UK to CRUK (we have received a response this week – see below after the complaint) We are a patient-led advocacy group, lobbying
They lie and cancer patients die…
Dear social media companies, Your social media platforms are a lifeline to cancer patients, especially those of us who have advanced cancer which will kill us. My friends from social
Open email to Breast Cancer Now re COVID19 (& letter for your MP)
Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps
We need you…
When I came onto Twitter in the months after my treatment ended, it wasn’t to become an advocate. Honestly, I’m still not sure I’m anything more than an accidental one.