Clinical trials are one of those things that no one really cares about until you need to. In the UK we have a pretty impressive cancer trial landscape that’s recognised
The Patience and Patients of Clinical Trials…
“It shouldn’t be this hard”. That was a comment on my Twitter thread…
Clinical trials are essential for testing new treatments for metastatic breast cancer (MBC). For patients, they represent hope – the chance to get access to a new potential treatment before
Having just completed screening for a clinical trial I must initiate this discussion…
Having just completed screening for a clinical trial I must initiate this discussion. Trials offer treatments not otherwise available – so with limited treatments available, it’s without question that I
Accessing clinical trials is a minefield…
Accessing clinical trials is a minefield: firstly, you need to find a trial that you are eligible for, which can include factors such as your cancer sub-type, the receptors you
I contacted METUPUK when I was diagnosed as a primary patient in 2018…
I contacted METUPUK when I was diagnosed as a primary patient in 2018. Even though my mum died of Metastatic Breast Cancer (MBC) in 2015, I had no real understanding
METUPUK joins the Northern Ireland Cancer Charities Coalition
METUPUK has joined the Northern Ireland Coalition (NICCC) and will work collaboratively with partner charities to improve outcomes for cancer patients in Northern Ireland. Ann McBrien, METUPUK’s Northern Ireland Executive
The Economist – Pioneering person-centred breast cancer care – Madeleine Meynell
At the End of May 2024 Madeleine attended an event at the offices of the Economist on Pioneering person-centred breast cancer care. This event was part of a wider project looking at
Data collection for metastatic breast cancer, “we are only counted when we are dead” – Kat Southwell
Just shy of six years ago I was diagnosed with Inflammatory Breast Cancer (IBC). Rare with a “high fatality rate and difficult to treat” is what I learnt in the
My Journey to Alpelisib – Asha Umrawsingh
Asha died in March this year. She wrote this blog explaining the problems that she experienced trying to access a drug that she was ineligible for because she fell outside of the
Drugs drugs everywhere, can you access ones that work? Kirstin Spencer
Here at METUPUK, we know drug access is a big issue for all metastatic breast cancer patients. There have been huge leaps and bounds made in terms of research, knowledge