10th July 2020 Hi Debbie, Trying to condense the points from the June email with attachments I sent you. Going forward what we would like now is – for you
Herceptin report re access to 3rd and subsequent line of therapy problem with drug access
Email complaint to CRUK May 2020
We attach an email complaint from METUP UK to CRUK (we have received a response this week – see below after the complaint) We are a patient-led advocacy group, lobbying
They lie and cancer patients die…
Dear social media companies, Your social media platforms are a lifeline to cancer patients, especially those of us who have advanced cancer which will kill us. My friends from social
Open email to Breast Cancer Now re COVID19 (& letter for your MP)
Dear Delyth, In the absence of any consistent reassurance from NHS or Third Sector sources, the members of METUPUK feel compelled to write to you to ask what specific steps
We need you…
When I came onto Twitter in the months after my treatment ended, it wasn’t to become an advocate. Honestly, I’m still not sure I’m anything more than an accidental one.
ABC5 Lisbon – The Global Alliance
Key Messages This was my first time at this conference which is held in Lisbon every 2 years and focuses entirely on Advanced Breast Cancer. Jo had been to the
Members of MetUpUK descend on parliament
Terminal breast cancer patients descended on parliament last week. Armed with over 70,000 signatures, they demanded change for the tens of thousands in the UK living with the killer disease.
A good thing? F*** off!
Soon after my diagnosis with secondary breast cancer aged 33 someone tried to explain to me that my diagnosis could be viewed as a good thing. I don’t know why
It’s not just hair!
Anger sometimes comes in waves, but I try to take my mind off things with work, outdoor activities and of course day to day life with my husband and two
Alternative therapies – do they make a difference?
Wim Hof Okay, so I’ve had metastatic breast cancer for five years now and I am definitely #BusyLivingWithMets. I was diagnosed with both primary and secondary at the same time