Seagen Biotech company asked two metastatic breast cancer (MBC) advocates Eva Schumacher from Mamma Mia online German cancer magazine and patient living with MBC and myself Jo Taylor founder of After Breast Cancer Diagnosis and METUPUK to be involved in a campaign about “platitudes” ie about what you DON’T want to hear and what you DO want to hear from family members, friends etc when you are living with an incurable disease.
This was developed with the help of other advocates and then we created a patient survey.
The survey has now been launched and the link is below and will only take approximately 10 minutes to complete https://online.igvmafo.com/survey/selfserve/593/2023034
We would like MBC patients (only) to complete this short survey which is open until the 1st October to gather information.
Please share this in your own communities so that we can gather as much information as possible.
The results of the survey will be shared later in the year once all the information is gathered and analysed.
We look forward to your thoughts as I know that many of you find hearing these platitudes annoying and upsetting and we want our voices to be heard.